Data Extraction - Appalachian Patient Stroke Recovery and Research Registry

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The population of rural Kentucky and West Virginia has a disproportionately high incidence of stroke and stroke risk factors. The Kentucky Appalachian Stroke Registry (KApSR) is a novel registry of stroke patients developed to collect demographic and clinical data in real time from these patients' electronic health records.

The UKHC clinical data set primarily focuses on the following information:

  • Local Inpatient Population
  • De-identified data requires no individual IRB approval if employed within the Covered Entity
  • Identified data requires individual IRB approval
  • Dates Available 2004- present

Currently we have the following search dimensions available from 2006- present:

- Demographics (age today, gender, marital status, race)

- Financial Classification

- Provider level detail (service)

- Medical Diagnosis (ICD 9 standard)

- Medical Procedures (inpatient facility and technical procedures) CPT codes

- Lab tests and results (Chemistry, Coagulation, Hematology, Urinalysis)

- Medications received

- Visit Details (age at visit, LOS, financial classification, service unit, weekend admission)

- Vital signs (height, weight, BMI, direct arterial blood pressure, noninvasive blood pressure, heart rate, pulse oximetry, respiratory rate, temperature, death status, tobacco status)
 

The IRB has approved de-identified UKHealthCare clinical information for research use under protocol number 13-0808-P6A; however, any research that requires identified protected health information are required to obtain their own IRB application approval prior to the release of clinical data.


 

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